About the Fund
Sadie Elizabeth McCann was born on April 29, 2010 to parents Adin and Cathy McCann and was diagnosed with Aicardi syndrome at six weeks of age. During her short life, Sadie experienced many medical challenges (unrelenting seizures, significant developmental and physical disabilities, multiple hospitalizations and surgeries), but she also brought great joy to her family and those around her. Sadie passed away in November 2013 from complications of Aicardi syndrome.
The McCanns were blessed by help and support from many individuals and organizations during Sadie’s short life. As a way to honor her memory, this Fund provides assistance to other families living with this challenging diagnosis.
Read more about Sadie’s journey
Learn more about Aicardi syndrome
How we help
140
Families supported
$327,000
Distributed to families
Grants have paid for:
- 42 Special needs equipment items
- 37 Therapy sessions and equipment
- 31 Conference or other travel expenses
- 29 Vehicle and home accessibility modifications
- 23 Wheelchairs and special needs strollers
- 23 Emergency expenses
- 17 Medical supplies
- 9 Respite services
- 6 Communication devices and equipment
- 5 Therapy and service dog trainings
Volunteer leadership
Executive Director
Cathy McCann
Board members
- Amy Davis
- Frannie Gallagher
- Sarah Macklin, DPT
- Jami Markle Hadley
- Adin McCann
- Megan McCann
- Morayo Orija
- Margaret Storey
- Josh Uebelhor
